Tag Archives: M.e.

CFS & Work

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Home from a long day of work today. First port of call, bed! Can’t really beat the comfort of putting ones legs up and relaxing. Muscles as usual aching like mad mixed with that ever present feeling of fatigue & weakness. My myalgia has been progressing far worse in the last 6 months and I have fewer periods of remission these days. Funny enough, I feel it worse when I am not active, perhaps a variant of post-exertional malaise as I am on my feet most of the day. I have a progressive form of CFS/ME, though retain at present a reasonable level of functioning.

I recognise I am in the minority of patients who continues to work full time. As a physician, you can imagine that it is also fairly taxing! Many have had to abandon work or try as best to work on a part time basis. Some have trouble simply trying to support their family. For the last 6 months, I have begun to question for the first time whether full time work is a realistic option for the future. Unfortunately like many places of work, this is simply not an option for hospital based medicine. I have made moves to switch to family medicine and working in the community as this lends itself better to part time work and one has to be realistic about one’s limitations. There is such a lure to stop pushing ourselves in trying to overcome our increasingly disabled bodies but I feel if I do stop, I know in my heart I would be unlikely to return. This is both from a personal and professional position. Hospitals etc simply don’t like gaps in ones CV’s and CFS/ME would be frowned on and treated with the same level of scepticism that all of you are so familiar with.

I will touch on this frustrating dismissive attitude and physician awareness of CFS in my next blog. I have a fair few anecdotes! As always, comments are welcome and I will do my best to reply as time permits.

Wishing you all the best,

Dr RT

As an side note, I am new to blogging and would appreciate if anyone could tell me if google will index this site? It would be nice to reach as large an audience as possible and I guess google is as good a place as any!

Introduction

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Welcome my dear friends to my very first blog post dedicated to fatigue, and in particular chronic fatigue syndrome, fibromyalgia and numerous others conditions that all result in often incapacitating feelings of lack of energy. What makes this a little different is that I’m a fully qualified doctor. And I am a sufferer. One that has experienced and still do fatigue and pain for close to 10 years. I am on your side and know howyou or your loved ones feel. I know the stigma, the suspicious looks from your physicians, the endless barrage of doctors in hoping that one will finally be capable of making a diagnosis or cure.

In this blog, I’ll take you through my own experiences behind the lines with these conditions which are often derided by my medical colleagues. I will discuss my own experiences in dealing with these conditions and having met experts in the field.

Finally, I will discuss where we are in terms of getting closer to determining diagnostic algorithms and potential treatment modalities for these disorders. There are no panaceas here but an open space to discuss everything that is fatigue related.

Lastly, being a blog, I want everything to be free from €£$. It disgusts me the lengths to which certain physicians prey on vulnerable people who have nowhere to turn to in order to make money by pilfering pills or techniques that have little or no credibility under rigorous scientific scrutiny. I will touch on a lot of this in due course but suffice to say I wish to debunk a lot of the junk that is written on the Internet. For obvious reasons, I prefer to remain anonymous given I still practice medicine at a large teaching affiliated university hospital. Hope to hear from you and all comments are warmly welcomed including any areas you’d like me to cover. Feel free to follow this blog and you will be notified when there are updates.

Best of luck to you all, keep your faith and never lose hope. Dr RT